Columbus Dispatch: Brown wants more pediatric-research funding

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Columbus Dispatch: Brown wants more pediatric-research funding

When Madison Reed was 7 months old, doctors told her parents she wouldn’t live past 2.

“No parents should have to hear those words,” Annette Reed said.

But unconventional methods helped Madison, who had type-1 spinal muscular atrophy, a rare disease impairing her motor functions. Now the Dublin resident is 15 years old.

The Reeds stood behind Sen. Sherrod Brown yesterday at Nationwide Children’s Hospital as the Ohio Democrat used their story to illustrate the need to increase funding for pediatric research.

Brown said that because children make up 50 percent of the population with rare diseases, the current 5 percent of National Institutes of Health research funding that goes toward pediatric studies is inadequate. Brown plans to propose a bill that would restructure the way the NIH awards grants, but has no cost attached to it, said Lauren Kulik, Brown’s press secretary.

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